Most do not use mobility aides to get around but still
get mobility allowance then use it for a motability car.
Go to your Doctors and ask the receptionist for the claim
forms.These you fill in then your Doc needs them back
for him to fill in his/her assessment of your child,a lot depends
on your Doctor if he/she thinks she should have it,also have a word with Doctor about Mobility allowance.
Long time recipient.
Autism's Beautiful Face
26. Jan, 2011
Extremely hard to get high mobility for a child with autism …i had to fight to get it and it was only because it was becoming impossible for us to go anywhere and we had letters stating Thomas was being removed from public transport from the bus comapnys and it was having an affect on his twin sister who was also becoming very down about the situation so we were stuck completely…he has only been getting it a few months and he is coming up to ten ..all i can say is i wish you lots of luck
Me & Them
26. Jan, 2011
Not sure about the mobility element, I know my son gets it because he needs someone with him at all times when out and about (he’s autistic too). The people who helped with our forms were the Parent Partnership Service - I can’t praise them enough for help with special needs etc. The lady who helped me even came out on a bank holiday weekend and I can thoroughly recommend them for this and for anything else to do with schools, local authorities, etc . . . If you want to contact me direclty please post a reply message and we’ll make contact . . . .
happy
26. Jan, 2011
I have a daughter with exactly the same problems as you describe. My daughter is autistic but is very intelligent and her speech is very good. But, like you I cannot take her on public transport and she is a danger to herself and others when out. Because the disability living allowance people look at the form and see she can walk they will not allow her the higher rate of mobility, they don’t seem to read the rest of the form that says she does run away and has been known to attack other people. I am currently appealing the decision with the DLA and have been to a tribunal. At the tribunal I was told that autism is not classed as a mental illness and therefore she was not eligible for the higher rate. I am now in the process of going to court to appeal the decision made by the tribunal. People fail to realise just how hard it is to live with an autistic child on a day to day basis. I would suggest you contact as many people as you can such as your MP and local media just to make people aware of how you struggle everyday. Keep appealing to the DLA and never take no for an answer, if enough of us do it they might listen to us and start to take us seriously. I wish you good luck.
boppstar
26. Jan, 2011
ask the SENCo at school for her/his support too
Andi C
26. Jan, 2011
Go to welfare rights adviser and get them to help you. You should be able to get the middle or higher rate of mobility allowance.
Go to a website, http://www.cerebra.org they have a booklet you can download that gives excellent advice on claiming DLA. It takes you through the questions asked and gives you examples of the language you need to use.
Appeal the decision. It can be done.
Adze
26. Jan, 2011
Most do not use mobility aides to get around but still
get mobility allowance then use it for a motability car.
Go to your Doctors and ask the receptionist for the claim
forms.These you fill in then your Doc needs them back
for him to fill in his/her assessment of your child,a lot depends
on your Doctor if he/she thinks she should have it,also have a word with Doctor about Mobility allowance.
Long time recipient.
Autism's Beautiful Face
26. Jan, 2011
Extremely hard to get high mobility for a child with autism …i had to fight to get it and it was only because it was becoming impossible for us to go anywhere and we had letters stating Thomas was being removed from public transport from the bus comapnys and it was having an affect on his twin sister who was also becoming very down about the situation so we were stuck completely…he has only been getting it a few months and he is coming up to ten ..all i can say is i wish you lots of luck
Me & Them
26. Jan, 2011
Not sure about the mobility element, I know my son gets it because he needs someone with him at all times when out and about (he’s autistic too). The people who helped with our forms were the Parent Partnership Service - I can’t praise them enough for help with special needs etc. The lady who helped me even came out on a bank holiday weekend and I can thoroughly recommend them for this and for anything else to do with schools, local authorities, etc . . . If you want to contact me direclty please post a reply message and we’ll make contact . . . .
happy
26. Jan, 2011
I have a daughter with exactly the same problems as you describe. My daughter is autistic but is very intelligent and her speech is very good. But, like you I cannot take her on public transport and she is a danger to herself and others when out. Because the disability living allowance people look at the form and see she can walk they will not allow her the higher rate of mobility, they don’t seem to read the rest of the form that says she does run away and has been known to attack other people. I am currently appealing the decision with the DLA and have been to a tribunal. At the tribunal I was told that autism is not classed as a mental illness and therefore she was not eligible for the higher rate. I am now in the process of going to court to appeal the decision made by the tribunal. People fail to realise just how hard it is to live with an autistic child on a day to day basis. I would suggest you contact as many people as you can such as your MP and local media just to make people aware of how you struggle everyday. Keep appealing to the DLA and never take no for an answer, if enough of us do it they might listen to us and start to take us seriously. I wish you good luck.
boppstar
26. Jan, 2011
ask the SENCo at school for her/his support too
Andi C
26. Jan, 2011
Go to welfare rights adviser and get them to help you. You should be able to get the middle or higher rate of mobility allowance.
Go to a website, http://www.cerebra.org they have a booklet you can download that gives excellent advice on claiming DLA. It takes you through the questions asked and gives you examples of the language you need to use.
Appeal the decision. It can be done.